In part three of five articles by Siren Interactive, Eileen O’Brien discusses how important patient registries are for the acceleration of orphan drugs and the awareness of rare diseases ...
Listing in the State Registry does not prevent owners from altering their property, restrict the use or sale of the property or establish times requiring that the property must be open to the public.
For example, the future of the Bulgarian National Cancer Registry is uncertain after state funding was withdrawn. As the chasm between demand for cancer care and its supply widens, real-world registry ...