Zevra Therapeutics to Present at the 21st Annual WORLDSymposium™
Zevra to receive a 2025 New Treatment Award for MIPLYFFA™ at the 21st Annual WORLDSymposiumEight abstracts discussing data and clinical ...
The Financial Express4 天
Rare disease patients urge PM Modi to address delay in Rs 974 crore national programme roll-out
According to the open letter, the delay in rolling out the proposed ₹ 974 crore national programme on rare diseases has exacerbated these challenges, leaving patients, most of whom are children, in ...
India Today4 天
Rare disease patients in crisis as delays stall national policy implementation
Patient advocacy groups warned that delays in implementing India's rare disease policy have left many, including children, in ...
Le Lézard5 天
JCR Pharmaceuticals to Present at the 21st Annual WORLDSymposiumtm 2025
JCR Pharmaceuticals Co., Ltd. (TSE 4552; "JCR") announced today that it will present at the 21st Annual WORLDSymposiumtm 2025, held February 3-7, 2025, in San Diego, Calif. The poster presentations ...
health.economictimes.indiatimes6 天
Advocacy groups urge Health Ministry to address Delays in ₹974 crore rare disease fund
Patient advocacy groups have written to Union Health Minister J.P. Nadda, raising concerns about the delay in rolling out the ...